Multiple myeloma and you

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Multiple myeloma and you

When someone is first diagnosed with multiple myeloma, it can often lead to feelings of anxiety, a sense of being overwhelmed, and even anger at the situation. Building knowledge can help you tackle the disease and deal with it every day. It’s the first step towards effective treatment.

The information on this website is intended to give you an overview of multiple myeloma and provide answers to some of the most commonly asked questions we hear from other multiple myeloma patients. Remember, though, that your haematologist should be the first person you talk to about more specific queries.

How you can use this website

Use the navigation panel above to jump to information that is most relevant for you. Alternatively, we have selected some of the most commonly searched for content below which you can click on via each icon.

Comprehensive booklets addressing some of the topics tackled in this website can also be found at the end of the concerned sections for you to download and keep.

This site is regularly updated with new resources, keep an eye out on the main page for new updates.

Key topics

About multiple myeloma

The information on this page is intended to give you an overview of multiple myeloma and provide answers to some of the most frequently asked questions we hear from people living with the condition.

Managing multiple myeloma

Click here to learn practical tips and tricks for helping to manage and live with your disease and its symptoms.

Treatments

Although there is not currently a cure for multiple myeloma, treatments are improving all the time. Click here to learn about the different treatements your doctor may discuss with you.

Carers

Caring for someone with multiple myeloma can be complex and demanding. This section provides helpful advice and guidence for family and friends who may be caring for a loved one.

Janssen collaborations & initiatives

Janssen has been active in oncology for over 30 years and we have a range of support materials, tools, and services to help you better live with your condition.

References

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Cancer.Net. Amyloidosis: Symptoms and Signs. Accessed May 26, 2022.
Mayo Clinic. Amyloidosis overview: symptoms and causes. Accessed May 26, 2022.
National Organization for Rare Disorders. Amyloidosis. Accessed May 26, 2022.
D'Errico S, Mazzanti A, Baldari B, Maiese A, Frati P, Fineschi V. Sudden death in lambda light chain AL cardiac amyloidosis: a review of literature and update for clinicians and pathologists. Int J Clin Exp Pathol. 2020 Jul 1;13(7):1474-1482. PMID: 32782665; PMCID: PMC7414507.
Mayo Clinic. Amyloidosis diagnosis and treatment. Accessed August 20, 2020.
Lousada I, Comenzo RL, Landau H, et al. Light chain amyloidosis: patient experience survey from the Amyloidosis Research Consortium. Advances in Therapy. 2015;32(10):920-928.
Merlini G, Dispenzieri A, Sanchorawala V, et al. Systematic immunglobulin light chain amyloidosis. Nature Review Disease Primers. 2018;4(1):38.
Hasib Sidiqi M, Gertz MA. Immunoglobulin light chain amyloidosis diagnosis and treatment algorithm 2021. Blood cancer journal. 2021;11(5):1-9.